Tag: disability

It’s mostly gone…

But not quite. My temperature is still spiking from time to time ,causing sweating that menopausal women would recognize as night sweats. It’s the kind of sweating that ,in the morning, you look at the bed and see you’ve sweated your silhouette onto the sheets, or if it’s daytime, you’re clothes are stuck to you. That’s bad enough, but then throw in half an hour of frozen to the core . But those are my only symptoms left, and they finally feel like they’re waning.

So today, I had a bath followed by a walk, with the leg brace around the hallway outside the condo using the handrails hubby put up. I just went once around, but…

Confession time. It was my first walk in about a year. I’ve been lazy and mildly depressed so I’ve neglected my exercise. Until I discovered and purchased my Zeen, I thought that if I could transfer, that’s all I needed . Then I saw the videos for the Zeen and thought it looked like something I could do.

I still think that I can use the Zeen. I just have to strengthen my left leg somewhat and my core a little. So it’s once around the railing every day until I’m able to Zeen.

You don’t see my disability?!

I see yours. Cause the clearly disabled person in a wheelchair that you say this to just thinks that you’re blowing smoke for no real reason but to boost your ego. It DOESN’T make us feel better in any way . It makes us feel like 💩 when we are not seen.

My favorite YouTube couple is working through ability differences and having fun. Happy Valentine’s Day 💗

I follow Cole and Charisma on YouTube, and I love how they interact . They have fun, no matter what the task, and it’s always a good time.

So, in honor of Valentine’s Day, I thought I’d share the following video, one of my favorites from their channel, because of the way they actually try to understand life in the others shoes, or wheels 😀 Not everything always works out, but they care enough to try.

Canadian app that helps the disabled people find accessible ways around indoors and outdoors.

This app has been needed since before the invention of apps! If you’re a wheelchair user, you know just how frustrating it is to hear that the building is accessible, but the you get there only to find out that you must enter through the loading dock around back, where they’ll try to find enough men to lift you and your chair up onto the dock. Yes, it’s just that fun. I, for one, can’t wait until it covers the whole country !

Watch “Disability Etiquette: How We Can All Be More Considerate in 2023” on YouTube

And we’re back with our lovely British lady to discuss disability etiquette. Things like shopping, parking, and toilets even hotel rooms, Gem takes you from what each thing is, why it’s important and necessary for someone and why you shouldn’t use it.

Watch “♿️I TRIED MY WIFES WHEELCHAIR, AND THIS IS WHAT SHOCKED ME” on YouTube

If any of you are manual wheelchair users and would like to be understood by your significant others, may I suggest doing what this clever young lady does and set up some challenges for them to perform in the wheelchair. I can guarantee that they will appreciate the struggles that you face on a daily basis . The first challenge should be to make their way to a nearby store so they can enjoy the shitty treatment from the general public, but this woman apparently loves her husband VERY MUCH, and likely thought that would be too mean. I really appreciated the fun loving attitude that the husband had throughout each challenge. The physical effort involved is nothing, when compared with the lack of energy and the inevitable brain fog that occurs when the injury is a brain injury. The exhaustion is physical and mental. Videos like this one really make me appreciate my power wheelchair., even though the mental exhaustion and brain fog still exist, because of the concentration that has to happen while driving any vehicle, it IS much easier physically.

The new normal.

Before you pass this post up, it’s not about the pandemic. The title refers to my new normal after 6 years of recovery from my massive stroke. There is good news and bad news as with everything. The good news my energy levels are up, my brain fog is down and so is my pain, which means I don’t have to buy as many gummies. My vision is better (either that, or my glasses are better), which means I can type again.I haven’t peed myself in months. As long as nobody pisses me off so much that all 6 cerebral aneurysms aneurysms explode simultaneously and I simply die,I could have a long life. The bad news is, I’m still in the wheelchair and likely will be until that person comes along. My neurologist told me when I asked him, Is there anything I shouldn’t be eating? “Eat whatever you want “. And there’s no way that I’m ever getting my left arm back.

BUT…

Hubby is now retired and we’re starting a new project on my YouTube channel. We are going to spend a couple of nights each month in a local hotel and show you if or how they can improve their wheelchair access, or how they can improve their treatment of disabled guests. 2 nights per month paid out of my pocket and I will be filming the entire hotel, or at least the parts that are wheelchair accessible. We will be going through the room with a fine tooth comb ,no detail overlooked. Then,we will suggest any improvements in writing to management . It’s my opinion that if you’re a 4 or 5 star hotel, you’re wheelchair accessible rooms should have the access and luxury perks too.

So, if you travel with a wheelchair and are thinking about western Canada as a destination, you will easily see a hotel,or perhaps a bed and breakfast that works for you.

This is what my new normal is and will look like. We were going to start this project at the beginning of this month, but unfortunately Omicron happened. Waiting until 2 weeks after we have both gotten our booster shots, before booking hotel number one. I hope you will stick with me through this next chapter, it should be entertaining, and hopefully educational.