I’m not here to disgust you as I live my life and I don’t want to hear that you feel disgusted by my wheelchair because it sounds like a YOU problem and I’ve got plenty of my own issues thank you. I’m a PERSON who uses a wheelchair.
Also, it’s not my job to be your inspiration from the seat of my power wheelchair. I don’t want your thumbs up as I transfer from the passenger seat of my car to my wheelchair. Or worse, you telling me that some nonexistent deity loves me to make yourself feel like you’re a good person all while conveniently forgetting that I’m a PERSON who uses a wheelchair and not every person believes what you believe.
I’m not a child. I’m a 57 year old stroke survivor, and I don’t appreciate being talked down to like I’m 5. I’m a fully grown, educated PERSON who uses a wheelchair
Just because it’s a power wheelchair doesn’t mean that I can’t speak. I can’t tell you how frustrating it is when people assume that I can’t speak just because I’m sitting in a power wheelchair. Ask me if you’re not sure, and I’ll happily tell you in paragraph form that not only can I speak, but you should listen to me when I do because I actually have something to say from my experiences that you might just need to hear. I’m a PERSON who uses a wheelchair.
So treat me like a PERSON. The wheelchair is not me. I’m the PERSON sitting in the wheelchair so treat me as you would any PERSON. Or better yet, treat me like you would want to be treated.
If you have issues with people who use wheelchairs you’d better make sure that you never end up in one because I can guarantee that you’re not emotionally strong enough to handle it.
I recently found this channel on YouTube. The physiotherapist takes you through issues and solutions to whatever you might be dealing with LITERALLY from moving your thumbs to running! This video is a short one, but there are longer form videos as well. I only wish that I knew about the channel when I was released from the hospital, I’d be further along.
But not quite. My temperature is still spiking from time to time ,causing sweating that menopausal women would recognize as night sweats. It’s the kind of sweating that ,in the morning, you look at the bed and see you’ve sweated your silhouette onto the sheets, or if it’s daytime, you’re clothes are stuck to you. That’s bad enough, but then throw in half an hour of frozen to the core . But those are my only symptoms left, and they finally feel like they’re waning.
So today, I had a bath followed by a walk, with the leg brace around the hallway outside the condo using the handrails hubby put up. I just went once around, but…
Confession time. It was my first walk in about a year. I’ve been lazy and mildly depressed so I’ve neglected my exercise. Until I discovered and purchased my Zeen, I thought that if I could transfer, that’s all I needed . Then I saw the videos for the Zeen and thought it looked like something I could do.
I still think that I can use the Zeen. I just have to strengthen my left leg somewhat and my core a little. So it’s once around the railing every day until I’m able to Zeen.
I see yours. Cause the clearly disabled person in a wheelchair that you say this to just thinks that you’re blowing smoke for no real reason but to boost your ego. It DOESN’T make us feel better in any way . It makes us feel like 💩 when we are not seen.
I follow Cole and Charisma on YouTube, and I love how they interact . They have fun, no matter what the task, and it’s always a good time.
So, in honor of Valentine’s Day, I thought I’d share the following video, one of my favorites from their channel, because of the way they actually try to understand life in the others shoes, or wheels 😀 Not everything always works out, but they care enough to try.
This app has been needed since before the invention of apps! If you’re a wheelchair user, you know just how frustrating it is to hear that the building is accessible, but the you get there only to find out that you must enter through the loading dock around back, where they’ll try to find enough men to lift you and your chair up onto the dock. Yes, it’s just that fun. I, for one, can’t wait until it covers the whole country !
And we’re back with our lovely British lady to discuss disability etiquette. Things like shopping, parking, and toilets even hotel rooms, Gem takes you from what each thing is, why it’s important and necessary for someone and why you shouldn’t use it.
If any of you are manual wheelchair users and would like to be understood by your significant others, may I suggest doing what this clever young lady does and set up some challenges for them to perform in the wheelchair. I can guarantee that they will appreciate the struggles that you face on a daily basis . The first challenge should be to make their way to a nearby store so they can enjoy the shitty treatment from the general public, but this woman apparently loves her husband VERY MUCH, and likely thought that would be too mean. I really appreciated the fun loving attitude that the husband had throughout each challenge. The physical effort involved is nothing, when compared with the lack of energy and the inevitable brain fog that occurs when the injury is a brain injury. The exhaustion is physical and mental. Videos like this one really make me appreciate my power wheelchair., even though the mental exhaustion and brain fog still exist, because of the concentration that has to happen while driving any vehicle, it IS much easier physically.