Still alive and something else

Yesterday I woke up feeling like I might live through the virus and today I awoke to the very pleasant surprise that I don’t have a fever anymore! It’s been exhausting and more than a little worrisome having a fever for so many days. What a relief! Thanks vaccine!

Now for the something else.

This music video was posted 3 days ago and it’s something that everyone should see and hear. You might remember the song by Christina Aguilera called Beautiful from a few years back, written by the incredibly talented Linda Perry ❤️. This is a new video for the 2022 version that is very powerful. It speaks to the youth of the world and us not so young as well. Please watch to the end because there is important information about your kids and how much you don’t know about what’s hurting them.

Technology is a tricky thing. It greatly helps us communicate with the world, but at what cost?

I got some bad news today

This past Friday night my husband had a bad chill and was fatigued, but by Sunday night night the chill was gone and his energy levels were better. Unfortunately, for me, by Sunday night I had chills and a fever and slept most of today away, so hubby broke open the covid tests and within a half hour we had the results. Hubby has covid and… so do I. If you’ve been with me for awhile, then you understand what is terrifying me about the news, even though I’m fully vaccinated.

I AM IMMUNOCOMPROMISED. When I had my stroke 7 plus years ago, it did a number on my throat (wasn’t allowed to swallow, even my own spit, for a month with af eeding tube down my throat) and my lungs (a couple of months with chest tubes draining the water and orange juice that the good Samaritans had given me, because everything I swallowed ended up in my lungs.. several years later just after covid19 was a thing and I was about to get my first vaccine, my neurologist wrote a letter to warn my Healthcare providers. The one sentence he wrote that I can’t get out of my head is. She is IMMUNOCOMPROMISED. As we should know by now, a large percentage of the people who have died from this virus, had an underlying issue.

While this news is absolutely not good news for me, it’s not as terrifying as it could be, if only because I’ve already lived 7 years and and 2 months of borrowed time (because the stroke should have killed me) and have lived through a horrible diagnosis of metastatic myxoma of the cerebellum, that I thought every day for a year was going to kill me, until the same neurologist explained that death was still fairly far off. The experience of that year was helpful because I was able to make my peace with my death, even finding the doctor who would help when the time comes.

I’ve been VERY CAREFUL about the pandemic and this is my first time with covid. I’m trying not to overreact, but I’m scared. 57 is definitely too young to die, but I’ve lived a life and no matter what this virus brings, I’m alright with it. Still crossing my fingers that it’s not the worst that could happen, but these last 7 years and 2 months have been some of the happiest of my life and if it has to end, at least I had that.


If any of you are manual wheelchair users and would like to be understood by your significant others, may I suggest doing what this clever young lady does and set up some challenges for them to perform in the wheelchair. I can guarantee that they will appreciate the struggles that you face on a daily basis . The first challenge should be to make their way to a nearby store so they can enjoy the shitty treatment from the general public, but this woman apparently loves her husband VERY MUCH, and likely thought that would be too mean. I really appreciated the fun loving attitude that the husband had throughout each challenge. The physical effort involved is nothing, when compared with the lack of energy and the inevitable brain fog that occurs when the injury is a brain injury. The exhaustion is physical and mental. Videos like this one really make me appreciate my power wheelchair., even though the mental exhaustion and brain fog still exist, because of the concentration that has to happen while driving any vehicle, it IS much easier physically.

Watch “Conservative TikToker Wants To Go Back To The 1950’s” on YouTube WHAT?!

This is something that I’ve been noticing for a few years now and I fully agree with the woman who unpacks the whole thing. It just seems as if women are being “put in their place “from all sides and in many more countries than feels healthy. The sad thing is that it’s coming from women too.

I’m sick and tired of hearing about how feminism is this big evil thing, when all feminism really is, is the right to choose your life’s path and not forced into someone else’s idea that you should be pregnant and in the kitchen, in pearls and heels, unless that’s what YOU want.

Please go and read the lyrics for the song I am woman. And remember that when I was born 57 years ago was when we had heard it all before and had been down there on the floor and just wanted to be able to enjoy the human experience, the whole human experience. We are humans after all aren’t we? And it still took years before we could rent an apartment without a man’s signature, or get a credit card in our name, and so on. Not to mention the right to our own bodily autonomy. Freedom is the ability to choose That’s something I learned the hard way just over 7 years ago. Think about all of the things that you are now ‘allowed ‘to do that you weren’t allowed to do in 1965 and ask yourself what you really want for your life to look like.

It’s important to remember to respect each other’s choices, ladies. If you want the Donna Reed existence I will applaud you and if you want to be Doctor Donna Reed I will clap just as hard because it’s what YOU WANT! All I ask is that you do the same for my choices whether or not you agree with them because you’re applauding the fact that we’re allowed to choose.