Just a few days ago actress Emilia Clarke told the world that she is indeed a strong and hardworking woman by mentioning that she survived 2 life threatening cerebral aneurysms. While I’m very happy to hear that she survived the brain surgery , I’m more than a little jealous that her aneurysms were operable. I know how painful the migraine headaches are among other worrisome issues that come with cerebral aneurysms and it couldn’t have been easy working through the dizziness and pain without having it show on her face.
Meanwhile, here I sit with my 6 inoperable cerebral aneurysms , pushing through the best I can.
Last week, I began a new morning routine and changed my 3 days a week, 2 hours each day of help, focusing on getting ready for the day to 4 days a week 1 hour a day focusing on exercise. I’ve been improving. Today I went up and down 21 steps and walked approximately 200 meters . Next week I plan to climb 28 steps and walk farther, assuming that one of my 6 aneurysms doesn’t pop an important blood vessel and kill me or worse. Oh,and by the way, all cerebral aneurysms are life threatening if only quality of life.
I stumbled upon a hiccup cure the other day. It feels odd, but it works. So much so that I can almost guarantee that you will never have more than 1 hiccup again. If you can breathe, you can do it. It doesn’t take athletic prowess or a great intellect. All you have to do is steer into it by breathing in while the first hiccup occurs. It may feel counterintuitive, but it works. Since my stroke, I’ve been getting bad bouts of hiccups after every meal, some of which lasting for hours. Until the other day, when, while yawning I hiccuped. I felt the breath travel quickly lower than ever before. I didn’t have another one til the next day after breakfast. It took until the 4th hiccup that I remembered, then on the 5th time I inhaled and that fixed it. I’ve used the same technique for every apres meal bout. Try it for yourself and let me know how it works out.
Over the past few days, I’ve been following the story of Luke Perry and the massive stroke he suffered . His death was announced less than an hour ago. The first word that came out of my mouth was, “lucky “. Why is he the lucky one? I hear you ask. Well from my perspective, anyone who has a massive stroke and dies within days is lucky. Lucky not to have to wake up in pain every day. Lucky not to have to be fed from a tube for more than a month. Lucky not to have to learn to swallow again as spittle drools uncontrollaby from the affected side of his mouth. Lucky not to have to have 2 nurses change his diaper multiple times a day. Lucky not to have to try desperately to move a muscle, any muscle with no response for months. Lucky not to have to spend years learning to walk again. It’s been almost 4 years and I still have to use a quad cane and calling what I do walking is still rather generous. My stroke took from me all of the things in life that I took pleasure in. I used to walk to anywhere I needed to go. I used to dance, when I say this I mean from the age of 4, I took classes in ballet, then later also tap and jazz dance classes. My entire life there has been dance. If you’ve been following this blog, you can know that for the past year or so I’ve found that the stroke still has new ways of affecting me via 6 aneurysms currently growing in my brain which have been caused vision problems, making my love of reading almost impossible, and updating this blog a much lengthier and frustrating process. I wouldn’t wish on my worst enemy what I’ve been dealing with since my stroke occurred in August of 2015. Let alone what my husband and parents have had to deal with. It takes a great deal of inner strength to go through what I’ve been through and if you are not strong enough to live through it you are better off dead.
The waiting is the hardest part. Just got the results of my last set of brain scans after what felt like a year but in reality was only a month. My family doctor gave me the run down. There was a moment after she read the first line of the report, that read , this case is highly unusual, when we looked at each other and both exclaimed, No kidding! The “good news” is that the majority of the aneurysms are stable. There are but two noteworthy changes. There now exists a 6th aneurysm located in the left hemisphere of my brain, so now it’s even 3 aneurysms per hemisphere. And the largest of the aneurysms has grown a bit. It now measures 6 millimeters as opposed to 5 millimeters 9 months ago. I have no idea if that is a little or a lot. I do know that they’re considered small, but I still need to know if it is growing quickly or at a glacial pace. Hoping for the latter , but knowing that it doesn’t get better from here. The wait time is the most stressful time I have to kill, and no amount of movie or tv watching makes it any less stressful. On a lighter note my exercises are improving. I’m able to do harder things more quickly and without losing my breath. As a matter of fact I’m now climbing 14 steps and walking a hallway that measures over 100 meters in half the time it used to take me at 15 minutes. I’m very proud of that. I’m trying to think of something new to throw on top of that before I start climbing to the 3rd floor. It feels like I’m ready to add to my routine, but not quite that much. There will be new video of my progress soon, hopefully 😊
It’s been almost a year since we adopted the adorable Graham from the SPCA, and I’ve been trying to figure out his breed since day one. All we actually know is that the SPCA put his age at one year and one month and he was found in small city a ferry ride and several hours away. Right from the beginning, he seemed younger, even though his size was about right.
The first second I saw him, you may recall, I was struck by his resemblance to the Russian blue colouring. Grey fur with silver tipping and gradation of colour around the nose. Then after a few months pass with Graham getting bigger and heavier, along comes a sad teenage wisp of mane and thickness of the upper lip.
Then, seemingly overnight he was nearly 18 pounds and the mane and tail are getting a lot fuller . His head is bigger too.
He’s now getting so big that my guesses as to breed go beyond just colouring to size , face shape and personality. As for size of cat and paws and shape of face we’ve been looking at the maine coon cat, but still thinking a Russian blue mix, until today when I found pictures of a maine coon cat and the nebelung ( which is the long haired russian blue ) that look almost exactly like Graham.
I feel like we need him to do a 23 and me test to really know what type of mix he is, however he’s an affectionate,gentle, loyal, funny, playful, absolutely beautiful guy to live with.
First, my favorite band, The Rolling Stones stones announced their tour of the United States, with one date kinda close to me and my head exploded . Then my husband and I decided it was too problematic to deal with the border and I will have the rolling stones on vinyl. Every album since 1971, oh yes I am spoiled and that’s why I married him.
Then, just the other day, my favorite singer, Cher announced that she’s coming to Vancouver with her ‘Here we go again ‘ tour. Both my mom and I immediately went into planning mode, after my head exploded. So happy that mom loves Cher too. It’s now a matter of hoping that the venue didn’t sell all of the disabled seats during Presale.
And hoping my mom (76), Cher (73 on the date ) or I ( at least 5 cerebral aneurysms) don’t die before the end of May. That’s a lot of hoping . And quite a long time to keep my fingers crossed.
*both head explosions were figurative. My head did not actually explode. No bloggers were hurt to make this post.
I’m very proud of this mornings accomplishments. First, on a small scale, the photo above of an empty orange peel is proof that I was able to get the peel off of my mandarin orange in one piece and with only one hand thankyouverymuch! No accomplishment is too small to celebrate.
Next on the big scale, I was able to get out of the tub without the use of any hands, and for the first time since the stroke . I just stood up, which is a big deal. So big a deal that, if I’m able to stand up after my bath consistently for 2 weeks, I will be able to cut my at home help down from 2 hours per visit to one hour of exercise based help,as opposed to helping me get out of the tub, and helping me dress, then exercise. It would also mean the ability to bathe whenever I want. Slowly but surely, I’m gaining back my independence.
I’ve been able to dress myself for a while now. It takes more time and concentration than I’d like and I always have to put my pants on twice because the first time they always end up on backwards . The other day I managed to put my knee high sock on by myself, which is no small feet, not that my feet are big but, you get it.
With every accomplishment, big or small, I take a bit more of my life back. And it feels wonderful!